We received our son Peter’s prenatal diagnosis of 47,XXY (Klinefelter syndrome) during pregnancy. Our genetics counselor actually gave us the option to terminate the pregnancy. Like many parents, we immediately turned to the internet looking for answers. What we found was overwhelming. Stories were all over the map, and much of the information was outdated or focused on worst-case scenarios.
Dyslexia is one of the most misunderstood things on the planet. For parents, there’s nothing harder than knowing something is wrong and not finding answers from experts: teachers, school specialists, physicians, & optometrists.
When our son Wil was diagnosed with 47, XXY at just five days old, we felt overwhelmed and alone. Living in Canada, we had strong local support, but no one…
Check out our latest spotlight on Maggie Olaya, a research assistant at The Focus Foundation! Role: I’ve been at The Focus Foundation for a little over two years as a Senior…
We’re proud to spotlight Liz Tipton, who has been a valued member of The Focus Foundation team for 10 years! Role at TFF: Liz works closely with families and children,…
Dr. Samango-Sprouse was invited as a guest speaker at The 16th Philadelphia Prenatal Diagnosis Conference on June 7th.
Playing Cupid! How about a little self-love this Valentine’s Day—and some love for your kids, too,while you’re at it? Learn more.
Focus Foundation Charity Spotlight. UPS Charity of the Month is led and supported by UPS pilots. Read to learn more.
Happy October 2023! View news, upcoming items, and The Focus Foundation happenings in our October social media recap.
New 47,XXY Research Published Dr. Carole Samango-Sprouse. Learn more.
The Focus Foundation shares An eXtraordinarY Night Recap. Thank you to the organizers, sponsors, and all those who attended!
Read more about a parent’s first mistake of the year and how when things don’t go as planned, they can still work out for good.
Parent, Ann Worley, shares her perspective on managing Holiday Expectations with a medically complex child.
The Focus Foundation’s 2022 End of Year Updates sends thank yous to supporters and shares our year’s accomplishments.
November 29th is Giving Tuesday 2022! Save the date for this special day of giving for The Focus Foundation. Learn how you can contribute.
October is Halloween & Disabilities Awareness Month! Learn how to celebrate with a child diagnosed with an XY chromosome variation disorder.
The Focus Foundation would like you to meet and get to know the 2022 Oktoberfest Student Ambassador Award Recipient!
Happy October! Take a look at news, upcoming items, and what The Focus Foundation has been up to lately in our October social media recap.
Neurocognitive Study of Boys with 47XXY, or Klinefelter Syndrome, recently published by Journal of Developmental & Behavioral Pediatrics!
The Focus Foundation thanks our wonderful parent Amy M. for sharing their parent success story of Early Hormonal Treatment (EHT) with Testosterone “T-shots”.
July has flown by! The Focus Foundation has been on the go and is excited to share some fun happenings on our July social media recap.
The Focus Foundation’s article on early detection of Autism Spectrum Disorder (ASD) has hit 500 reads! We are ecstatic to watch our goals of increasing awareness become a reality.
Read more about the X and Y Chromosome Variation Awareness Month from a parent’s, Ann Worley, perspective.
The Focus Foundation enjoys sharing fun facts, news, and more! Check out our May important dates blog to learn more.
The Focus Foundation has been busy and is very excited to share some fun facts, news, and interesting happenings on our April social media recap.
The Focus Foundation loves sharing information, activities, ideas, and more! Read our social media recap to view some of our 2022 favorites.
In hopes of creating more peace on earth and goodwill in our homes, I invite you to join me in this challenge to ‘take’ this holiday season rather than ‘give’.
In hopes of creating more peace on earth and goodwill in our homes, I invite you to join me in this challenge to ‘take’ this holiday season rather than ‘give’.
The Bucksbaum Family Research Center is NOW OPEN! Please view our ribbon-cutting ceremony that took place on October 25, 2021.
Did you know? National Mustard Day is on August 7, 2021! The Focus Foundation shared interesting facts and fun activities about mustard. Read more.
Did you know? National Mustard Day is on August 7, 2021! The Focus Foundation shared interesting facts and fun activities about mustard. Read more.
The 2020 Summer Olympics in Tokyo has finally begun on July 23, 2021! The Focus Foundation shared some history, fun facts, and activities about the Olympics. Learn more.
Have a fun National Ice Cream Day and National Ice Cream Month! Celebrate with the Focus Foundation’s delicious recipes, fun facts, and some fun books to read. Learn more.
July is National Picnic Month! The Focus Foundation shares some great treat ideas and activity tips to have a fun Teddy Bear picnic this summer!
Have a Happy Fourth of July! Celebrate this fun day with the Focus Foundation’s tips on activities and some fun books to read. Learn more.
June 27th is National Sunglasses Day! Keep your eyes healthy and celebrate this fun day with the Focus Foundation by learning some history and fun facts. Read more.
The Focus Foundation sends well wishes for a Happy Father’s Day to all Fathers, Grandfathers, and father figures. Read more to learn an easy dessert recipe.
June 6th is National Yo-Yo Day. The Focus Foundation celebrates this fun day by sharing some history and fun facts. Read to learn more.
The Focus Foundation shares a fun origami dart paper airplane activity. Follow the steps to learn how to make it yourself. Read more.
After 17 years of being underground, in the coming weeks, billions of cicadas will emerge. The Focus Foundation shares some fun facts and activities about the upcoming cicada invasion. Learn more.
The Focus Foundation is celebrating 15 years! With your help, valuable research is happening. Raise fun, funds, and awareness. Learn more about how you can help!
Happy Mother’s Day from The Focus Foundation. Celebrate this special day with these fun coupons and ideas to show how much you care. Read more.
The Focus Foundation’s very own Dr. Samango-Sprouse was honored to be a part of Dr. John M. Graham Jr.’s virtual Festschrift. Read more.
April is World Autism Month! Help spread autism awareness and inclusion by learning more and doing some daily acts of kindness.
The Focus Foundation has published an article in Genetics and Medicine which shows early hormonal treatment (EHT) can improve receptive and expressive language capabilities in boys with 47,XXY!
Spring is here! This April for World Autism Awareness Month, learn some great facts about an amazing athlete, some fun activities you can try, and more!
Autism Awareness Day is April 2nd. Dr. Samango-Sprouse reported on a new screening method to detect infants at risk for Autism Spectrum Disorder (ASD).
Covid-19 has greatly impacted us all and we are so happy to be back with our 49er families for the 17th Annual 49er Conference and Clinic in 2021! Register and learn more.
Spring is here and we have some awesome scavenger hunt projects for kids! Print the sheet to get started.
March 20 is Mr. Rogers’ birthday. Let’s take a look at some ways we can make friends and be kind to one another.
Spring is nature’s way of saying, “Let’s Party!” ~Robin Williams. See what’s celebrated this season!
Build sculptures using paper strip hearts as a fun Valentine’s Day craft, or turn it into a cool engineering challenge.
From Groundhog Day to the Full Snow Moon, this February is looking to have a long and chilly winter.
Brigid Muller, a senior at Walter Panas High School in Cortlandt Manor, NY, ran The Marine Corps Marathon on the weekend in support of her cousin.
We all live in the one world together. Let’s see how we’re different in some ways and the same in other ways. Here are some recommended books on diversity for your kids.
We have put together a list of apps for kids that enhance your children’s emerging skills and that they will absolutely adore.
Fine Motor Skills are most often associated with the small muscles in the fingers, hands, and forearms. However, the development of other parts of the body can also play a role in fostering good coordination and accuracy.
Did you know that something as fun as rhyming is an important step on the path to reading? This simple play with words is an important stage in preliteracy.
Being a dentist is a wonderful career choice. It means you want to help people be mouth healthy and make a difference in their health and well-being.