The Focus Foundation’s Promise to our Families and Individuals
The Focus Foundation’s Promise to all our Families and Individuals with X and Y chromosomal disorders, Dyslexia and Developmental Dyspraxia:
- To be family centric and encourage patient focused outcomes that are collaborative between family, medical provider and your child’s intervention team
- To promote innovative and novel research throughout the world on X & Y chromosomal variation disorders, dyslexia and developmental dyspraxia
- To increase awareness, promote early detection, and develop creative and aggressive programs for all children with these disorders
XY Variants in Children Hiding in Plain Sight
The Focus Foundation is dedicated to helping children and families affected by X & Y Variations, Dyslexia, and/or Developmental Dyspraxia. The Focus Foundation believes that through increased awareness, early identification and syndrome-specific treatment, children with these conditions can reach their full potential.
We want health care providers, educators and parents to know:
1 in 500 children have X & Y Variations that cause learning disabilities, dyslexia, developmental dyspraxia, anxiety, and ADHD. Whenever these symptoms are present, XY chromosomal disorders should be screened for and ruled out.
X & Y Chromosomal Variation
20 babies born each day have an X & Y Chromosomal Variation, and only 5 will be diagnosed in their lifetime. They suffer without appropriate and timely diganosis. With the early detection, they can receive optimal care and biological treatment whenever indicated.
Developmental Dyspraxia is common in children with X and Y chromosomal disorders and is more than “just clumsiness”. It is difficult for children with developmental dyspraxia to identify, plan and execute any motor action. They improve with targeted treatment and are more successful in every aspect of life.
Symptoms of Dyslexia
Dyslexia is common in children with X and Y chromosomal disorders. But,not all children with dyslexia will have an XY disorder, However, it is reasonable to complete a chromosomal analysis to rule out XY disorders on every child with dyslexia.
Dyspraxia and Dyslexia
10 percent of children with X & Y Variations are identified prior to birth and they usually develop Dyspraxia and Dyslexia. The knowledge gained from caring for these infants and toddlers benefits all children who have reading, speech and motor planning dysfunction.
With the proper diagnosis and intervention, children who have these neurogenetic disorders can be transformed from vulnerable to powerful, from school failure to academic success, from disabled to able.