The Focus Foundation is chosen as the February 2024
UPS Pilot Inspired Charity of the Month
Publication: Chief Pilot Information Line
By: Capt. Jeff Whiteman, System Chief Pilot
February 9, 2024
In the summer of 2009, SDF A300 First Officer Jeremy Glunt and his wife, Renee, were overjoyed to welcome their son Levi into the world. However, their happiness was quickly overshadowed by a devastating diagnosis: Levi had 49,XXXXY Syndrome, a rare genetic disorder affecting only 1 in approximately 100,000 males. The prognosis seemed grim, with medical literature suggesting that Levi might never walk or talk.
Determined to provide Levi with the best possible chances in life, Jeremy and Renee embarked on a journey to find answers and support. Their search led them to The Focus Foundation, a unique 501 (c)(3) research-based organization dedicated to rare disorders like Levi’s. Led by Dr. Samango-Sprouse, the Chief Science Officer, the foundation’s team of specialists provided comprehensive care tailored to Levi’s needs, drawing on years of clinical experience and innovative research. Through their groundbreaking research, publications, and clinical care, they have positively impacted thousands of individuals with similar disorders, such as X and Y chromosomal disorders, Dyslexia, and Developmental Dyspraxia.
Determined to provide Levi with the best possible chances in life, Jeremy and Renee embarked on a journey to find answers and support. Their search led them to The Focus Foundation, a unique 501 (c)(3) research-based organization dedicated to rare disorders like Levi’s. Led by Dr. Samango-Sprouse, the Chief Science Officer, the foundation’s team of specialists provided comprehensive care tailored to Levi’s needs, drawing on years of clinical experience and innovative research. Through their groundbreaking research, publications, and clinical care, they have positively impacted thousands of individuals with similar disorders, such as X and Y chromosomal disorders, Dyslexia, and Developmental Dyspraxia.
Levi’s progress is a testament to the dedication of family and the expertise of The Focus Foundation. Levi receives a combination of outpatient and school-based therapies, including physical, occupational, and speech therapy. He has learned to walk and jog slowly with the aid of lower extremity bracing. And he undergoes hormone therapy and dental procedures to address his medical needs. Today, Levi is a happy, loving, and kind child who continues to thrive both intellectually and physically.
Deepest thanks to Jeremy and his family for generously sharing their experience and courageously confronting these enormous challenges. The support given to The Focus Foundation will give children with a rare disorder, like Levi, the opportunity for the care they need.
You can read more success stories, learn about The Focus Foundation, and donate or volunteer at their website, thefocusfoundation.org
View original publication on The Focus Foundation UPS Charity of the Month spotlight here: VIEW PDF
The Focus Foundation specializes in X & Y Chromosomal Variation Disorders such as Klinefelters 47, Testosterone, Dyslexia, Dyspraxia, ADHD, and other Genetic Disorders. For more information please contact us or schedule a consultation at: thefocusfoundation.org/contact-us
