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27
April

European X & Y Chromosomal Conference – Canosa di Puglia, Italy

April 27 - April 30
Palazzo Mariano, Via Santa Lucia, 76012 Canosa di Puglia BT Italy
$60
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European X & Y Chromosomal Conference – Canosa di Puglia, Italy

Registration: $65 USD

REGISTER NOW

We are very excited to announce our Second Conference of the European X & Y Chromosomal program sponsored by The Focus Foundation in conjunction with “A.L.M.A. 48-49 x,y ONLUS”, a new families association. We are planning to visit Canosa di Puglia (BT), Italy April 27, 28, 29, and 30.

The conference is at “Palazzo Mariano” – Via Santa Lucia, Canosa di Puglia (BT), Italy on Thursday, April 27, Friday, April 28 and Sunday, April 30.
(limited number if needed)
There are Parent coaching/specialist sessions for 40 minutes with each of the five pediaitrc providers.  Children with 49, XXXXY are 48, XXXY are given a priority for scheduling until March 27th, 2017. Then families of all children with 47, XXY, 47, XXX and 47, XYY are welcome to arrange specialist sessions with our five providers. Space is limited so please submit request as soon as possible. Request must be received by March 27 to obtain a visit.

Specialists include:

Immunologist
Neurodevelopmentalist
Neurologist and Geneticist
Pediatric Physical Therapist
Speech and Language Pathologist

Saturday, April 29
There will be various presentations by our experts for all families and providers starting at 9:30 a.m – 5pm.
(The conference is open to all families of children who have X and Y Chromosomal Variations including 47, 48, and 49 disorders.)

Topics and Speakers:

47, XXY, 48, XXXY and 49, XXXXY: Optimizing Neurodevelopmental Outcome Based on your Disorder and Personalize your Child’s Treatment by Dr. Carole Samango-Sprouse

Treatment Considerations in the Speech and Language and Communication of Children with Extra X Chromosomes Ayesha Ganges, MA CCC-SPL

The Development of Neuromotor Skills and Motor Proficiency in Children with X and Y Chromosomal Variations Dr. Francie Mitchell

Insights Into Immunological Issue Associated with X and Y Chromosomal Variations Dr. Gretchen Harmon

The Neurological Underpinnings of X and Y Chromosomal Variations and Impact on Outcome Dr. Andrea Gropman

8:30 p.m. Dinner Show: An additional $65 USD (€60 Euros) for adults and children are free at “Sala Ricevimenti Lo Smeraldo”
Click here for more information or to register for the dinner.

*This is a fundraiser for “A.L.M.A. 48-49 x,y ONLUS”

Please respond with attendance to cbedard@thefocusfoundation.org by April 14.
Contact Paolo D’Ambra at pd110377@libero.it for Dinner Show information and any travel questions.

Co-sponsored by The Focus Foundation and “A.L.M.A. 48-49 x,y ONLUS”

FOR MORE INFORMATION CONTACT:
cbedard@thefocusfoundation.org

REGISTER NOW

Details

Start: April 27
End: April 30
Cost: $60
Event Category:

Venue

Venue Name: Palazzo Mariano
Address: Palazzo Mariano, Via Santa Lucia, 76012 Canosa di Puglia BT Italy
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Organizer

Organizer Name: Carrie Bedard
Email: